When life throws you a medical curveball, it’s like stepping into a twisted game show, complete with stress, anxiety, and the fear of the unknown. Welcome to “Navigating the medical maze and the Importance of Self-advocacy”!
After my diagnosis with Invasive Lobular breast cancer, and referral to a breast surgical oncologist, I began preparing for the appointment. Naturally, I turned to my trusty friend, Dr. Google. Little did I know that Dr. Google was leading me down a rabbit hole of despair, sprinkled with extra stress and anxiety.
I must confess, I wasn’t exactly ready for my first meeting with the breast surgeon. In my mind, I imagined the doctor would shower me with information about my diagnosis, offer recommendations, discuss treatment options, and paint a vivid picture of my upcoming medical adventure. But oh boy, was I wrong!
Have you ever found yourself in a situation where a medical provider blurts out a diagnosis, throws treatment options at you, mentions more tests, and points you toward other specialists—all in the time it takes to microwave a bag of popcorn? Then, they casually ask, “What questions do you have?” Seriously? I could barely remember my own name at that point!
As I stumbled out of that office, I couldn’t help but wonder, “What just happened in there?”
As it turns out, this chaotic scenario is more common than you’d think. According to the National Institute of Health, many patient complaints stem from breakdowns in the doctor-patient relationship. It’s like the doctors are racing against the clock, too busy to stop and smell the medical roses, and laser-focused on the diagnosis. It’s a prescription for empathy amnesia.
According to Web MD, holistic medicine sees the body as a delicate balancing act, where every part depends on the others. So, if one part decides to go rogue, it can create havoc for the whole system. Talk about drama!
But fear not, dear readers! Here’s what I’ve learned on this rollercoaster ride of a medical journey:
• Stick to reputable medical websites for information and education.
• Educate yourself about your diagnosis; you’re the captain of this ship!
• Prepare your questions in advance (bring a notepad, a friend, or a voice recorder, if needed).
• Don’t hesitate to seek clarification—your doctor should be your medical BFF.
• If communication woes persist, speak up; your concerns matter.
Trust your gut, literally and figuratively. If it doesn’t feel right, explore other options.
• Second opinions? Go for it! Your health, your choice.
• Grill your doctor about everything—treatments, symptoms, and who’s who on the medical team.
• Ask your doctor to translate those complex test results into plain English.
• Remind your doctor that you’re the expert on your own body.
Remember, you’re not just a patient; you’re a person with rights. So, be the fiercest advocate for your healthcare. If you don’t, who will?
Karen, I love this entry as much as the others. You are owning your opportunity to be a voice for The Lord. Thank you for this lesson!
Thank so much Harrie and thanks for sharing with my sisters!